Logan started chemo on Monday, March 20. They are able to treat his tumor very aggressively due to his age.  Children, especially babies are able to receive a higher dose due to their resiliency.   Unfortunately the tumor is too big for his little head to be removed at this time.  We are happy to share that the tumor hasn’t metastasized anywhere else.

The plan is 2 rounds of chemotherapy followed by an MRI to confirm the tumor has shrunk enough for Dr. Adamo to remove it.  Then he will have 3 more rounds of chemotherapy to kill any cancer cells that are left followed by about a year and a half of maintenance.

Other good news is that once they remove the tumor, it’s not like an adult where we would have to re-learn how to walk, eat and talk again.  Logan will just learn those things from a different part of his brain.  There are already plans in place to assist with physical therapy and/or any neurological issues that could arise.

He is handling chemo very well so far.  No real side effects (that we can tell).  We think he was nauseous the other day but that is really it.  He is receiving steroids (for the swelling in his brain), neupogen (helps white blood cell count), anti-nausea and anti-seizure meds.  He hasn’t had any seizures but because the tumor is in his brain and is very vascular, this is precautionary.

His chemo schedule is as follows (per round):

  • Day 1, 2 & 3
  • Day 8
  • Day 15
  • Day 21 (new round starts – same schedule)

We will remain in the hospital while he receives chemo and we will not be allowing visitors except immediate family as Logan’s immune system will be compromised due to the chemo.  It is safer and both mom and dad are more comfortable having him monitored by the nurses and doctors during this time.  He’s only 4 months old, he can’t tell us what’s wrong.

We are very happy and confident with how things are going so far.

Keep the positive thoughts and prayers coming.